Things I'm still waiting for or questions that haven't been answered.
In no particular order, just as I think of things, I'll be adding to it. There's a lot, and I can't remember how long I've been asking for most of it.
The last time I was sectioned (March/April 2024), I was discharged before I had a CTR. I said I still wanted a CTR at home, they said I could still have a CTR at home, then they cancelled my CTR after I was discharged.
They've since told me that I need to be on the DSR (dynamic support register) to get a CTR (which is untrue), and that an urgent CTR would be an LAEP (local area emergency protocol), when they know that I'm asking for an actual CTR that I'm involved in.
Four handwritten A4 pages of previous CTR actions that haven't been done, from four different CTRs since 2020.
A printed copy of the final CTR report from July 2023.
Respite care.
I had six weeks a year pre-agreed at a care home, but it's never available and they haven't found anywhere else for me to go. Now they're saying that I need a new care assessment to get any care.
Adapted social care assessment.
I've been asking for a new, adapted care assessment (clear, written questions) for getting on for two years now. They've been telling me that I need a new care assessment since around March(?) this year, told me they would look into adapting it and I haven't heard anything about an adapted assessment since, they just keep offering me an appointment to do the assessment in person, knowing that they can't do it that way.
S117 meeting.
I haven't had one since before I left hospital in January 2021. As far as I'm aware, s117 aftercare is meant to be reviewed every year. If they've ever reviewed it, they've done it without involving me and without telling me.
Adapted s117 aftercare assessment.
They say they've adapted it all they can. They haven't. They didn't even tell me I needed it til about 18 months after I was entitled to s117 aftercare, because I apparently "wasn't ready to engage" at the time (I didn't know about it).
I've lost track of all the questions I've asked that I haven't had answers to, because most of the time I don't get replies to my emails. (And then they wonder why I keep emailing...) It's things like:
do I still have my direct payments for carers?
can I be switched to the virtual wallet/can you give me information about it so I can know whether it's suitable?
are you looking for respite care? (though I know the answer is no)
what happened to the clear information that transforming care and LPFT social care were putting together for me?
why aren't you helping/where is the help?
are you adapting the care assessment?
do I have a new psychiatrist/care coordinator? (been discharged now, never got new ones)
how does prescription delivery work?
(I can't think properly at the moment, I just wanted to put something down in case I don't get a chance again for some time.)
[Moved from another blog. The date/time are from the original post.]
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